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For people whose skin doesn’t work – we do.

DEBRA, founded in 1978, is the national charity that funds research and healthcare to support individuals and families affected by Epidermolysis Bullosa (EB) – a painful genetic skin blistering condition which, in the worst cases, can be fatal.

We have a vision of a world where no one suffers from the painful genetic skin blistering condition, EB.


DEBRA focuses its work in two areas:

- We fund pioneering research to find effective treatments and, ultimately, a cure for EB.
- We provide care and support to improve the quality of life for individuals and families living with EB.

Read more about our work and the principles that govern it in our Research and Care strategy.


Get involved

Our stores are vital, they provide crucial income to support people living with EB as we search for a cure, and are a hub for local communities. Shopping with DEBRA is also good for your purse and for the planet; in our stores you can discover a range of affordable and quality nearly new and pre-loved items.

We cannot accept donations while our stores are closed. If you have items to donate to our stores, we please ask you hold onto them for when we are able to re-open.  We offer a FREE collection service for unwanted furniture and electricals.

Unfortunately due to current restrictions, some events in our exciting fundraising calendar have been postponed or cancelled. However, there are still ways you can get involved in raising awareness and funds to #FightEB help people living with EB at this difficult time.










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Covid-19 means our support services are needed more than ever so your support makes a real difference. Thank you. 


HRH The Countess of Wessex, GCVO.

DEBRA is registered as a Charity in England and Wales (1084958) and Scotland (SC039654).